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National Organization for Rare D...

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About

The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

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Peter L. Saltonstall
President & CEO
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Edward Neilan
Chief Medical & Scientific Officer
Pamela Gavin
Executive Vice President
Vincent Murphy
VP, Finance
Prashant Goel
VP, Information Technology
Alexa Moore
VP, Development
Heidi Ross
Acting VP, Policy & Regulatory Affairs
Debbie Drell
Director, Membership Services
Jill Pollander
Director, Patient Services
Norine Schwarzchild
Director, Human Resources
Rebecca Aune
Director, Education Programs
Aliza Fink
Director, Research Programs

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