Rebecca Aune

Rebecca is the Director of Education Programs for the National Organization for Rare Disorders (NORD®). In this role, Rebecca works with the Educational Initiatives team and cross-departmentally to implement strategies to grow NORD’s educational content and programs for medical professionals, patients, caregivers, and students. She liaises with NORD’s Education Committee and directs the continuing medical education (CME) program. Rebecca leads the project team and develops programming for NORD’s annual Living Rare, Living Stronger Patient and Family Forum, and the Rare Diseases and Orphan Products Breakthrough Summit. She also oversees NORD’s student programs.

Rebecca comes to the Educational Initiatives team with more than 12 years of nonprofit program management experience. Her most recent work was with the Pulmonary Hypertension Association (PHA), a NORD member organization. At PHA, Rebecca directed PHA’s continuing medical education (CME) programs, resulting in 6,500 hours of CME delivered to more than 2,500 healthcare professionals annually. Additionally, Rebecca led the patient and caregiver education programs that educated more than 400 patients and caregivers in person each year and provided a video library that received 36,000 video views annually. She successfully led a team to reinvigorate online educational programming with professional videography and animatography and migrate PHA’s online learning platforms to new content and learning management systems for an improved learner experience and increased CME course completion.