PTEN Research
Siriana Baldini is a seasoned legal expert with extensive experience in the field, currently serving as Chair of the Board of Trustees at Alex The Leukodystrophy Charity since September 2024 and as a Member of the Board of Trustees and legal advisor for PTEN Research since October 2018. Previously, Baldini held multiple legal roles including Legal & Business Affairs at Universal Music Group, Legal Counsel at gunnercooke llp, Senior Associate at Allen & Overy, Solicitor at Fieldfisher, and Lawyer at Latham & Watkins. The academic background includes a Master Law Degree from Università Cattolica del Sacro Cuore and a QLTT from the College of Law, London.
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PTEN Research
PTEN Research is a UK-registered charity. We fund and facilitate research that will lead to new and better treatment for PHTS, a rare genetic condition which currently has no health authority approved therapies. We do this by funding PHTS research projects and bringing together a global network of PHTS focused experts and other key partners. PTEN hamartoma tumour syndrome (PHTS) is a rare genetic disease caused by mutations in the PTEN gene. An individual with a PTEN mutation may be diagnosed as having Cowden Syndrome (CS), Bannayan-Riley-Ruvalcaba Syndrome (BRRS), or Autism Spectrum Disorder (ASD) associated with macrocephaly (large head). Together this spectrum of conditions is known as PHTS. Registered charity number: 1173589