Alison McIvor

SWAN is a not for profit charity and incorporated association. We provide information and support to families caring for a child with an undiagnosed or rare genetic condition. We want to ensure that nobody has to walk this journey alone and that information and professional services are accessible to everyone affected by a genetic condition. We want to raise awareness of genetic conditions to the broader community. Services and support in our community are often allocated on the basis of a diagnosis. People without a diagnosis can miss out. We advocate for better services, resources and information for our families. Together we can unite to improve the lives of all those affected.