Action Duchenne
Helen Keenan has cultivated a diverse professional background with significant experience in fundraising and community service. Currently serving as a Volunteer with Make-A-Wish® UK since October 2018, Helen also holds the position of Community Fundraising Officer at Action Duchenne, a role held since April 2015, and previously served as Head of Fundraising. Helen's experience includes a role as a Decision Maker at the Department for Work and Pensions from November 2020 to January 2022, and a Trustee position at Community Transport from December 2016 to January 2021. Earlier in their career, Helen worked as an HR & Training Administrator at Together Fundraising from March 2011 to April 2015.
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Action Duchenne
Duchenne muscular dystrophy (DMD) is a rare and complex genetic muscle wasting condition, mainly affecting males. It is one of the most severe muscular dystrophies, with muscle weakness appearing in early childhood between the ages of 2 and 5. Our vision is clear; a world where lives are no longer limited by Duchenne muscular dystrophy. We achieve this vision through our vital work; * Funding research for everyone living with Duchenne * World-class support for families * Cutting-edge science education programmes