EveryLife Foundation for Rare Diseases
Christine Von Raesfeld is an experienced advocate and leader in the healthcare sector, currently serving as a PRMR/MSR Committee Member for the Partnership for Quality Measurement and contributing as a Co-Author for The Light Collective's patient-led AI Rights framework. Christine holds board positions with the Light Collective and People with Empathy, the latter being a platform aimed at enhancing the quality of life for patients and caregivers. In addition, involvement as a Strategic Advisor for Research to the People focuses on addressing the needs of patients with rare diseases. Christine is also a member of the Leadership Council at CNS Summit and serves as a Participant Ambassador at the All of Us Research Program, among various other roles in healthcare advocacy and research initiatives. An educational background includes degrees from San Jose City College and Mission College.
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