Stephanie Riordan

Senior Director Of Patient Programs at EveryLife Foundation for Rare Diseases

Stephanie Riordan is an experienced professional in patient program management and community service. Currently serving as the Director of Patient Programs at the EveryLife Foundation for Rare Diseases since June 2021, Stephanie manages various patient initiatives, including the Rare Hub and the #RAREis Scholarship. Prior experience includes founding Sunflower Weddings LLC, and serving as Resident Services Operations Manager at The Children's Inn at NIH, where Stephanie improved operational efficiency and developed new programs. Previous roles include Volunteer Coordinator for Make-A-Wish Mid-Atlantic, where oversight of 600 volunteers was a key responsibility, and experiences at Make-A-Wish Philadelphia and Arcadia University. Stephanie holds a Bachelor of Arts degree in Sociology with a minor in Pan African Studies from Arcadia University.

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EveryLife Foundation for Rare Diseases

The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation.


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