FH Europe Foundation
Grainne Crowley has extensive experience in partnerships, development, and advocacy roles within the pharmaceutical and healthcare sectors. Grainne has worked with various organizations to capture patient-specific data, develop internal guidelines for interactions, and strengthen the patient voice within companies. With a background in European public affairs and EU strategy development, Grainne has showcased their expertise in engaging with advocacy organizations and external stakeholders. Additionally, their experience in healthcare policy and CSR initiatives highlights their commitment to making a positive impact in the industry.
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FH Europe Foundation
The European FH Patient Network in an umbrella organization of international patient networks, actively working together to secure early identification and diagnosis of Famillial Hypercholesterolemia (FH) and other inherited lipid conditions, incl rare forms, to prevent early cardiovascular disease (CVD). Charity Registration number: 1170731 Familial Hypercholesterolaemia (FH) is an inherited condition that leads to levels of cholesterol that are higher than that of the general population, sometimes double or even three or four times. FH affects around 1 in 250 people – but the prevalence may vary across Europe. FH is a genetic condition caused by a ‘spelling mistake’ in our DNA – the genetic material with all the instructions needed to ‘build’ humans.