Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates, and clinical partners.

Non Profit

Global Genes

Charlene Son Rigby

Bridget Michaels

Katelyn Peters

Andrea Rogers

Karmen Trzupek

Vanessa Voge-Farley

Teneasha Washington

Barry Weber

Victoria Weiss

Katherine Lim

Shankar Ramkellawan

Nick Ehly

Kathy O’Connor

Pam Todd Email

Lisa James

Kristin Soto

Mindy Gikas

Shruti Mitkus

Tim Ehrhard

Maria Della Rocca

Pam Rattananont

Advisory and Council Roles

Marketing and Communications

Patient Services and Support

Research and Data Management

Community Engagement and Support

Leadership Team

Teams at Global Genes

Advisory and Council Roles

Marketing and Communications

Patient Services and Support

Research and Data Management

Community Engagement and Support

Leadership Team