Hypersomnia Foundation
Edward Stepanski, Ph.D. currently serves as the General Manager of Data Services at Ovation.io, a role held since August 2022, where the company focuses on aggregating de-identified data from independent molecular diagnostic labs to benefit R&D in life sciences. Simultaneously, Stepanski is a Board Member for the Hypersomnia Foundation and Principal at Stepanski Research Consulting, both roles initiated in November 2023 and August 2021 respectively. Previously, Edward Stepanski held leadership positions at Autem Therapeutics as VP of Clinical Development, ConcertAI as EVP and General Manager of Real World Data Products, and as SVP and COO at Real World Evidence Products, ConcertoHealthAI. Earlier career highlights include serving as COO at Vector Oncology, VP of Scientific Affairs at ACORN Research, and Associate Chair of Behavioral Sciences at Rush University Medical Center, where a notable role was Director of the Sleep Disorders and Research Center. Edward Stepanski began their professional journey at the University of Illinois at Chicago as Clinical Director of the Center for Sleep and Ventilatory Disorders from November 1993 to July 1998.
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Hypersomnia Foundation
Our Mission The Hypersomnia Foundation engages, informs and champions our global community to improve the lives of people with idiopathic hypersomnia and related sleep disorders. #hypersomnia #Beyondsleepy #narcolepsy #KLS Our Values PASSION: We give voice to the significant unmet needs of the hypersomnia community, continuously striving to realize our dream of a cure. VALIDATION: We understand what it is like to live with an invisible disease. When you share your story, we believe you. INCLUSIVENESS: We believe all people with hypersomnias deserve timely diagnosis and effective treatment in order to live a healthier, more fulfilling life. PARTNERING: We strive to connect our patient community to multiple stakeholders who are critical to improving the lives of people with central hypersomnias. Clinicians, researchers, pharmaceutical companies, educators, regulators and legislators benefit from strong ties to each other and the patient community. TRUST: We are a trusted source of medical information for people with hypersomnia, their physicians and the general public. Your donations and shared medical information are fully protected and used only in accordance with your wishes. DEDICATION: Our team of volunteers and employees devote their time and professional skills—with unwavering focus—to the best interests of the hypersomnia community.