Susie Novis Durie

Founder & Director, Global Patient Initiatives at International Myeloma Foundation

Susie Novis Durie founded the IMF in 1990 with her late husband, Brian Novis, and Brian G.M. Durie. M.D., as a means to advance myeloma research and to develop and implement patient and physician educational programs in myeloma.

In 1992, Novis Durie was elected Executive Director of the IMF. Under her direction, the IMF has continued to experience impressive growth, and the programs that she has developed have become models for other organizations worldwide.The program she is proudest of is the Patient & Family Seminars. Attending a physician conference in London, she saw doctors “meeting the professors” and thought patients should also have the opportunity to meet the professors, learn about multiple myeloma, and share experiences with other patients. In 1994 she held the first ever Patient & Family Seminar which was held in Los Angeles, and shortly thereafter began holding seminars across the US. In 1997 she expanded seminar program to the UK. Today patient seminars are held around the world.

Susie Novis Durie has testified before the United States Congress on behalf of greater resources for multiple myeloma research. In 2002, she was presented with the Joseph Michaeli Award for her outstanding contributions to the understanding, advancement and treatment of multiple myeloma. Investor’s Business Daily featured Susie Novis Durie in its Leaders & Success column, and she has been recognized in many articles worldwide for the important work that she has done on behalf of multiple myeloma patients and their families.