Hillary Savoie

Hillary Savoie serves as the Board Chair, Founder, and Director of The Cute Syndrome Foundation, which focuses on raising awareness of SCN8A mutations, funding research, and supporting affected families globally since May 2013. Additionally, Hillary has held the position of Director of Community Engagement and Communication at Neurvati Neurosciences since September 2021 and has extensive experience as a writer, speaker, and advocate from January 2012 to March 2022, with contributions to notable publications such as Rolling Stone and the New York Times Parenting. Hillary was a Features Writer for Romper from July 2016 to March 2020, focusing on personal essays related to rare diseases, and previously served as Chief Communications Mama for the Feeding Tube Awareness Foundation from January 2013 to January 2015. Hillary holds a Ph.D. and a Master's degree in Communication and Rhetoric from Rensselaer Polytechnic Institute, as well as a Bachelor of Science in Architecture from McGill University.