Rare Disease Data Trust partners with community provider health systems to execute patient-centric data monetization, executing lost rare disease patient analytics, through commercially sponsored (by bio-pharma) targeted searches for undiagnosed rare disease patients. Accelerating the discovery and diagnosis of targeted rare disease patients and rescuing them from their diagnostic odysseys.

Hospital

Rare Disease Data Trust

David S. Connor

Michael Fitzgerald

J Mark Tumblin

David Slosky

Rhys Williams

Mark Tumblin

Kerry Hart

The Executive and Advisory team at Rare Disease Data Trust is responsible for steering the company's strategic direction, making high-level decisions, and providing expert guidance. This team combines leadership with specialized knowledge to drive efforts in patient-centric data monetization and rare disease patient analytics, ensuring the successful execution of commercial partnerships and operational excellence.

Executive and Advisory

Leadership Team

Executive and Advisory

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Leadership Team