Mary Cobb

Mary joined RARE-X in November 2020 and brings years of leadership experience in rare disease patient advocacy; strategic planning, marketing & communications; organization strategy & development; nonprofit leadership; and patient engagement. Since 2010, Mary has been dedicated to empowering rare disease patient advocacy groups to increase their organizational effectiveness and ability to integrate their patient communities’ voices in research. She established PatientVue, LLC to support the rare disease community and was also in a leadership position with NORD for several years. She is currently on the Board of the Foundation for Sarcoidosis Research and was on the Board of the Phelan-McDermid Syndrome Foundation for over four years.

Previously, Mary was in senior leadership roles at global healthcare communications agencies within the Interpublic Group of Companies and WPP. She developed strategic & communications initiatives for the pharmaceutical/biotech industry, including Pfizer, Novartis, J&J, Wyeth/Schering, and Barr Pharmaceuticals (now Teva), among others.

Cobb has a Masters in Organization Development & Change from American University, Washington, DC.