Debra - The Butterfly Skin Charity

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We are the butterfly skin charity. Uniting for change for everyone living with epidermolysis bullosa (EB), caring for someone with EB, or bereaved by EB. (Registered Charity Number 20021726, Revenue Number CHY 8703).

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Jimmy Fearon

Chief Executive Officer

Jimmy Fearon

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Alejandra Livschitz

Head Of Strategic Communications And Supporter Engagement

Deirdre Callis

Head Of Family Support

Louise Delahunty

Head Of Philanthropy

Pauline Williamson

Head Of Finance

Sinead Hickey

Head Of Research, Policy And Advocacy

Mark Hyland

(secretary)

Michael O Rourke

(chairperson)

Bobby Healy

Board Member

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