Mary Morlino

Mary Morlino joins the team as the RARE Concierge/Case Manager. Previously she worked at the EveryLife Foundation for Rare Diseases as a Patient Engagement Consultant. She is also the Co-Founder of MarylandRARE, a patient-led coalition of rare disease stakeholders focusing on legislative policies in the State of Maryland at the Federal, State, and local levels.

Mary is also involved with the Foundation for Sarcoidosis Research as a speaker, Mentor/Leader of the Civic Engagement Working Group, and advocate. She is also a Sarcoidosis patient, living with multi-system Sarcoidosis. Diagnosed after a 7+ year diagnostic odyssey she understands many of the aspects of the patient experience.

Drawn to the world of rare disease advocacy because of her two nephews who have Muscular Dystrophy. Inspired by their efforts in disability advocacy, she continues to advocate for all rare diseases and disability issues.