National Organization for Rare Disorders
Alexa serves as the Vice President of Development at the National Organization for Rare Disorders (NORD®). In this role, she is responsible for developing the ongoing strategic vision for NORD’s programmatic fundraising and individual giving, corporate membership, and major special events. She brings over 15 years of experience in sales, marketing, and strategic management to her position with NORD’s senior leadership team.
Prior to joining NORD in 2017, Alexa spent 12 years in UBM’s Life Sciences Group where she worked to curate and deliver engaging and timely educational content via industry-specific conferences. It was there that she first worked with NORD and the rare disease community for several years on the Rare Diseases and Orphan Products Breakthrough Summit. Her industry experience spans clinical, advocacy, finance, and compliance functions.
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National Organization for Rare Disorders
The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.