Neuromuscular Disease Foundation
Tara Voogel has a diverse work experience spanning several years. In 1974, they began working on herself, aiming to overcome suffering. In 2012, they started a blog called "http://taratalksgnemyopathy.blogspot.com/" where they discuss their experiences and challenges of living with GNE Myopathy. Additionally, in 2014, they played a key role in co-founding GNE Myopathy International, which focuses on global patient advocacy for GNE Myopathy. In 2017, they joined THE NEUROMUSCULAR DISEASE FOUNDATION as a Patient Advocate and Program Manager. Finally, in 2018, they worked at Rare Advocacy Movement (RAM) as an Advocate in the Spotlight.
Tara Voogel studied Elementary Education and Teaching at the Instituut Voor de Opleiding Van Leraren, although no specific years are provided. Tara also attended Los Angeles City College, where they focused on Clinical Nutrition, but again, no timeframe is specified.
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Neuromuscular Disease Foundation
The Neuromuscular Disease Foundation's (NDF) mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach and funding critical research focused on treatments and a cure.
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