Megan O'Boyle

Megan O'Boyle has a diverse work experience spanning over several organizations and roles. In their most recent position as the Patient Engagement Lead at RARE-X, they focused on accelerating rare disease diagnosis and treatment through the availability and analysis of patient-owned data. Prior to that, they held various roles at the National Center for Advancing Translational Sciences (NCATS), including working on the Cures Acceleration Network Review Board and the Rare Diseases Registry Program. Megan also served as an advisor at AcademyHealth, where they worked on projects related to patient-generated data and research. Megan has also been active in the rare disease community, with roles as a principal investigator and board member at the Phelan-McDermid Syndrome Foundation - Data Network (PMS_DN). Megan has served on advisory boards for the Simons Foundation SPARK program and FasterCures, a Center of the Milken Institute. Additionally, they have contributed as a grant reviewer at the NCATS Office of Rare Disease and has experience as an office manager at Callaghan & Partners, LLC, and Environmental Issues Management, Inc.

Megan O'Boyle earned a Bachelor of Science (BS) degree in Communications with a specialization in Advertising/PR from Loyola College in Maryland in 1989. Prior to their college education, Megan attended Georgetown Visitation Prep, though the specifics of their field of study or degree obtained during this time are unknown.