Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It affects the heart and blood vessels, the bones and the eyes. Knowing the signs is the key to early and accurate diagnosis and life-saving treatment.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. We work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. We will not rest until we have achieved victory.
Learn more and get involved at Marfan.org.

Health Care

The Marfan Foundation

Carolyn Levering

April Dawn Shinske

Megan Martin

Kathy Murphy

Kara Burke

Judy Gibaldi

Josephine Grima

Inderjeet Kaur, CPA

Helaine Baruch

Gretchen G.

Eileen Masciale

Dominga Noe

Deborah Goodman

Alyssa Aiello

Leadership Team

Philanthropy and Development

Business Development & Operations

Teams at The Marfan Foundation

Leadership Team

Philanthropy and Development

Business Development & Operations