Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It affects the heart and blood vessels, the bones and the eyes. Knowing the signs is the key to early and accurate diagnosis and life-saving treatment.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. We work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. We will not rest until we have achieved victory.
Learn more and get involved at Marfan.org.

Health Care

The Marfan Foundation

The Marfan Foundation's headquarters in New York, NY, United States

Carolyn Levering

Eileen Masciale

April Dawn Shinske

Judy Gibaldi

Josephine Grima

Inderjeet Kaur, CPA

Helaine Baruch

The Leadership Team at The Marfan Foundation is responsible for steering the organization towards its mission by developing and executing strategic initiatives, fostering partnerships, and overseeing operations. This team, comprised of executives with expertise in various fields, collaborates to enhance research efforts, improve outreach to families and healthcare providers, and elevate public awareness of Marfan syndrome. Together, they work to ensure the foundation's sustainability and impact in the lives of those affected by this life-threatening condition.

Leadership Team

The Philanthropy and Development team at The Marfan Foundation is dedicated to securing funding and resources to support the organization's mission. They cultivate relationships with donors, oversee fundraising initiatives, and develop community programs that engage supporters and raise awareness about Marfan syndrome and related disorders. Through strategic partnerships and volunteer efforts, this team aims to create meaningful impact and advance research and educational opportunities for affected individuals and families.

Philanthropy and Development

The Business Development & Operations team at The Marfan Foundation focuses on establishing strategic partnerships, enhancing operational efficiency, and securing funding to support the foundation's mission. By leveraging expertise in finance and global business development, they work to expand the foundation's reach, improve service delivery to families and healthcare providers, and drive innovative research initiatives. Their efforts aim to create a sustainable and impactful future for those affected by Marfan syndrome and related disorders.

The Marfan Foundation

Org chart

Teams

Leadership Team

Philanthropy and Development

Business Development & Operations

Offices

The Marfan Foundation

Org chart

Teams

Leadership Team

Philanthropy and Development

Business Development & Operations

Offices

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