The Marfan Foundation

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Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It affects the heart and blood vessels, the bones and the eyes. Knowing the signs is the key to early and accurate diagnosis and life-saving treatment. The Marfan Foundation creates a brighter future for every... Read more

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Carolyn Levering
President & CEO

Carolyn Levering

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Alyssa Aiello
Director Of Development
Deborah Goodman
Senior Vice President Development
Dominga Noe
Director of Community Programs
Eileen Masciale
Chief Global Business Development Officer
Gretchen G.
Vice President Information Technology
Helaine Baruch
Chief Philanthropy Officer
Inderjeet Kaur, CPA
Chief Financial Officer
Josephine Grima
Chief Science Officer
Kara Burke
Sr. Director Of Development
Kathy Murphy
Manager of Volunteer Development
Megan Martin
Director of National Philanthropy
April Dawn Shinske
Chief Communications & Marketing Officer