Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It affects the heart and blood vessels, the bones and the eyes. Knowing the signs is the key to early and accurate diagnosis and life-saving treatment.

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders. We work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. We will not rest until we have achieved victory.
Learn more and get involved at Marfan.org.

Health Care

The Marfan Foundation

Carolyn Levering

April Dawn Shinske

Megan Martin

Kathy Murphy

Kara Burke

Judy Gibaldi

Josephine Grima

Inderjeet Kaur, CPA

Helaine Baruch

Gretchen G.

Eileen Masciale

Dominga Noe

Deborah Goodman

Alyssa Aiello

The Philanthropy and Development team at The Marfan Foundation is dedicated to securing funding and resources to support the organization's mission. They cultivate relationships with donors, oversee fundraising initiatives, and develop community programs that engage supporters and raise awareness about Marfan syndrome and related disorders. Through strategic partnerships and volunteer efforts, this team aims to create meaningful impact and advance research and educational opportunities for affected individuals and families.

Philanthropy and Development

Leadership Team

Business Development & Operations

Philanthropy and Development

About

Team members

Other teams at The Marfan Foundation

Leadership Team

Business Development & Operations