Mission
Our mission is to generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth. The time is now: Our vision is a world without CMT!

Description
Charcot-Marie-Tooth, or CMT, is the most commonly inherited peripheral neuropathy and is found worldwide among all races and ethnic groups. Discovered in 1886 by three physicians, Jean-Martin Charcot, Pierre Marie, and Howard Henry Tooth, CMT affects an estimated 2.8 million people.

General Information
The CMTA is a 501(C)(3)nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT. A voluntary Board of Directors governs the CMTA. The Medical Advisory Board of the CMTA consists of over 50 clinical and research medical professionals. This international group of men and women are noted CMT experts in neurology, genetics, orthopedic surgery, physiatry, physical therapy and podiatry.

The CMTA currently has more than 20,000 patients and families, supportive friends, and medical professionals in its database.

Charity

Health Care

Non Profit

Charcot-Marie-Tooth Association

Ashley Trout

Ray Merry Souza

Jeffrey Megown

Mark Boxshus

Laurel Richardson

Melissa Arakaki

Sarah Kaider

Sarah G.

Keaton Butowsky

The Community Engagement team at the Charcot-Marie-Tooth Association focuses on building connections and support networks for individuals affected by CMT. They organize events, facilitate support groups, and coordinate outreach initiatives to educate the public and foster a sense of community among patients, families, and medical professionals. This team plays a crucial role in enhancing awareness, engagement, and advocacy for those impacted by CMT.

Community Engagement

Community Engagement

About

Team members