CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.

We aim to accomplish our mission by:

* financing and encouraging meaningful research,
* providing support to individuals affected and those that care for and love them,
* promoting awareness,
* educating patients, caregivers and health professionals and
* advocating for issues important to our community.

Okur-Chung Neurodevelopmental Syndrome is a rare genetic disorder first identified in 2016. OCNDS is caused by a mutation in the CSNK2A1 gene which is located on Chromosome 20. The gene CSNK2A1 creates a protein called CK2 which plays a crucial role in development. A mutation in this gene disrupts typical development.

 CSNK2A1 Foundation is a 501(c)(3) non-profit organization.  EIN #82-4220939

Charity

Health Care

Non Profit

CSNK2A1 Foundation

Org chart

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