EveryLife Foundation for Rare Diseases

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The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation.

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President

Emil Kakkis

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Vice President Of Policy

Chief Of Policy, Advocacy, And Patient Engagement

Vice President Of Alliance Development

Director Of Communications

Senior Director Of Operations And Events

Chief Operating Officer

Associate Director Of Policy And Research

Associate Director Of Finance And Salesforce

Board Member

Chief Executive Officer

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