Global Genes

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Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates, and clinical partners.





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Charlene Son Rigby

Barry Weber
Data Protection Officer & Chief Information Security Officer
Pam Rattananont
VP, Development & Marketing
Kathy O’Connor
Senior Director, Corporate Engagement
Maria Della Rocca
Senior Director, Patient Services
Tim Ehrhard
Senior Director, IT
Karmen Trzupek
Senior Director of Scientific Programs
Victoria Weiss
Senior Director, Finance
Shruti Mitkus
Director, Genetic Education & Navigation
Michele Whiteside
Director, Programs & Events
Kristin Soto
Associate Director, Development
Lisa James
Associate Director, Strategic Advancement
Katherine Lim
Senior Manager, Digital Marketing
Nikki Richards
Senior Manager, Brand
Shelby Carney
Program Manager
Shankar Ramkellawan
Manager, Data Science & Insights
Katelyn Peters
Manager, RARE-X Community Engagement
Teneasha Washington
Diversity, Equity & Inclusion Lead
Vanessa Voge-Farley
Research & Data Governance Lead
Andrea Rogers
Project Lead
Mindy Gikas
Human Resources Advisor
Pam Todd Email
Educational Resource Strategist
Nick Ehly
Program Coordinator
Bridget Michaels
Coordinator, Community Support, RARE-X