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debra
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The Dystrophic Epidermolysis Bullosa Research Association of America (Debra of America) is the only U.S. nonprofit providing all-inclusive support to the EB Community, through funding research for a cure and by providing free programs and services for those with EB.
Org chart
Brett Kopelan
Executive Director
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Jason Kelly
Director, Supporter Led Events
Mike Powers
Finance Director
Aigerim Saparova-Smith
Digital Marketing Director
Jenna Kubeck
Special Events Director
Heather Fullmer
Community Engagement Director
John Maslowski
Board Member
Board & advisors
Andrew Tavani
Chair
J Alec Alexander
Treasurer
Angela Christiano
Director
William Cornman
Director
Leslie Rader
Director
Robert Ryan
Director
Thomas Trimarchi
Director
James Wetrich
Director
Arlene Pessar
Founder, debra of America
Alan Arbuckle
Advisor
Eugene A. Bauer
Advisor
Susan Bayliss
Advisor
Gary Bellus
Advisor
Anna L. Bruckner
Advisor
Richard A. F. Clark
Advisor
Jonathan Alden Dyer
Advisor
Ervin Epstein
Advisor
Nancy B. Esterly
Advisor
Jo-David Fine
Advisor
Elaine V. Fuchs
Advisor
Sharon Glick
Advisor
Paul Honig
Advisor
Gerald S. Lazarus
Advisor
Moise L. Levy
Advisor
Anne W. Lucky
Advisor
Joseph McGuire
Advisor
Laurence Miller
Advisor
Kimberly D. Morel
Advisor
Amy Paller
Advisor
Francis Palisson
Advisor
Neil S. Prose
Advisor
Elena Pope
Advisor
Juliette Prendiville
Advisor
Dennis R. Roop
Advisor
Lawrence Schachner
Advisor
Tor Shwayder
Advisor
Daniel Siegel
Advisor
Mary K. Spraker
Advisor
Madeline Weiner
Advisor
Timothy Wright
Advisor
Ryan Fullmer
Director
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