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National Organization for Rare Disorders

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The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

Industries

Health Care

Headquarters

Danbury, United States

Employees

11-50

Links

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Peter L. Saltonstall

President And CEO Emeritus And Special Advisor

Peter L. Saltonstall

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Edward Neilan

Chief Medical & Scientific Officer

Pamela Gavin

Executive Vice President

Prashant Goel

VP, Information Technology

Alexa Moore

VP, Development

Heidi Ross

VP, Policy & Regulatory Affairs

VP, Human Resources

VP, Patient Services

VP, Finance

Director, Education Programs

Kelly Esperias

Chief Strategy & Operations Officer

Christopher J. Schaber

Corporate Council Member

Jennifer Knapp

Oregon Volunteer State Ambassador

Aimee Guarnieri

Nevada Rare Action Network Ambassador

Teams

Human Resources and Compliance

12 members

Leadership Team

7 members

Information Technology and Support

5 members

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